Press On

It is incredibly hard for me to post the news we learned today… Patrick has relapsed with one tumor above his right ear and possibly a second tumor in his chest. Dr. Katzenstein thinks that the tumor is in the bone of his skull (as opposed to the tissue of the brain), but we will not know that for sure without further testing. We are deeply saddened, but gearing up for another full attack on the beast neuroblastoma. We have not told the children and don’t plan to do so until we cannot keep it from them any longer. Patrick will have another MIBG scan tomorrow, and we will meet with Dr. Katzenstein afterwards. We are trying to schedule CT and MRI scans and likely bone marrows and a lumbar puncture so that we can determine exactly the extent of his disease. I will keep everyone posted as we receive the news.

I am too shaken now to wax poetic, but I am sure that type of e-mail will follow as we adjust to our new “new normal.” We are strong and ready to fight. We appreciate your prayers.

Love,
Erin