We had a really nice week punctuated by a visit on Tuesday from Patrick’s brother fireman, Greg Tobin. Greg is truly one of the nicest people ever to grace this good Earth. He stopped by the house on his way to Columbus to see his son who just graduated from Ranger school. Patrick was so excited to show Greg our house and then show off during his golf lesson. it was extra special to share the beginning of our off-treatment life with Greg. Greg and his fellow fireman have brought more joy to Patrick than they will ever truly know.
Today, I was privileged to accept a very generous donation on behalf of Patrick’s kindergarten class to Press On: The Patrick R. Chance Fund for Neuroblastoma Research (www.pressonfund.org). Patrick and his classmates performed chores over a period of time and donated the money they earned to neuroblastoma research. These hard-working children (and their generous parents) raised almost $600 to help us find a cure for childhood cancer. Thank you! I was blown away by their commitment to community service in general and to Patrick specifically. If you could only read the comments they wrote in the journal presented to me, you would be moved to tears (I was!).
And a note about Jack… He is stable and his family is trying to move him back home after doing a week of low dose chemo at Sloan. I am happy that Dr. Kushner and his team have determined a type of chemo that he can tolerate while recuperating from his surgery. Please keep Jack in your prayers.
So, we began our spring break week tonight with a tee ball game and dinner with friends. We will continue celebrating the week with a lot of playtime and a trip to Augusta for the Masters. I am excited about seeing my family and my sweet goddaughter. Our updates will be less frequent now that treatment has ended, but we will continue to update you periodically about our doings and certainly when scanxiety sets in! We will be doing scans every three months for the next year…
Thanks for all your support these past three years. It has been a long, hard road punctuated by more sweetness and bright spots than we could have ever imagined thanks to all of you.
Love,
Erin
PS Right after I posted this, I heard a strange noise from Anna’s room and she was throwing up all over her bed. Hooray for normal! : )
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